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  • HIV false diagnoses

    Hello, I have a few concerns regarding the treatment my daughter received through the ER while admitted as a sexually assaulted victim. She was raped 30 hours prior to checking in, and after doing the standard check up she was also tested for any STDS that she may have contracted during the assault including HIV. She was then administrated multiple antibiotics while in the hospital and prescribed a 28 day antibiotic Truvada, Isentress, and MetroNIDAZOLE. These pills are used together to fight and prevent any signs of HIV. After leaving the hospital the doctor printed out piece of paper that listed the instructions on how often to take each of the pills and handed it to my daughter with the prescription order and then discharged my daughter leaving her with the impression that she takes these pills and everything will be fine (health wise). Exactly three weeks later the doctor called my daughter and introduced himself, my daughter then put her phone on speaker where myself and my mother, her grandmother, were present. The doctor then proceeded to inform her that her test results had came back and she had tested positive for HIV. All three of us were extremely surprised and in a state of shock. Then he went on to say "unfortunately the HIV was not from the sexual assault, it was pre-existing." Then went on to explain that HIV takes a minimum of six weeks to show up and the assault had only took place three weeks ago. My daughter who was in tears asked. "Will I have to take these pills every day for the rest of my life or I will die?". At that moment my mother and I both began to cry. When the doctor responded to my daughters question I began to wonder if this was even the legal way of informing someone who is HIV positive that they are indeed positive. His response was "Your going to have to contact your primary care doctor." My daughter told him that she did not have one. He then advised her to look into getting one as soon as possible and apologized for being the "barrier of bad news" and hung up.

  • #2
    Re: HIV false diagnoses

    I wish to inform you that the HIV positive test results are normally informed to the patient in person in a confidential manner. Only rarely is it informed on telephone.

    AFF

    Comment


    • #3
      Re: HIV false diagnoses

      Your daughter had control of her end of the phone. She knew it was the dr calling. She chose to include you and her grandma. I'm not sure exactly how you think he should've informed her - encrypted email?

      I'm not sure why you posted this as "false diagnosis"?

      And it's "bearer" of bad news. Which the department of health is going to be to her attacker. She will not be identified, but he will be notified he was exposed to HIV.

      Comment


      • #4
        Originally posted by Lward11 View Post
        Hello, I have a few concerns regarding the treatment my daughter received through the ER while admitted as a sexually assaulted victim. She was raped 30 hours prior to checking in, and after doing the standard check up she was also tested for any STDS that she may have contracted during the assault including HIV. She was then administrated multiple antibiotics while in the hospital and prescribed a 28 day antibiotic Truvada, Isentress, and MetroNIDAZOLE. These pills are used together to fight and prevent any signs of HIV. After leaving the hospital the doctor printed out piece of paper that listed the instructions on how often to take each of the pills and handed it to my daughter with the prescription order and then discharged my daughter leaving her with the impression that she takes these pills and everything will be fine (health wise). Exactly three weeks later the doctor called my daughter and introduced himself, my daughter then put her phone on speaker where myself and my mother, her grandmother, were present. The doctor then proceeded to inform her that her test results had came back and she had tested positive for HIV. All three of us were extremely surprised and in a state of shock. Then he went on to say "unfortunately the HIV was not from the sexual assault, it was pre-existing." Then went on to explain that HIV takes a minimum of six weeks to show up and the assault had only took place three weeks ago. My daughter who was in tears asked. "Will I have to take these pills every day for the rest of my life or I will die?". At that moment my mother and I both began to cry. When the doctor responded to my daughters question I began to wonder if this was even the legal way of informing someone who is HIV positive that they are indeed positive. His response was "Your going to have to contact your primary care doctor." My daughter told him that she did not have one. He then advised her to look into getting one as soon as possible and apologized for being the "barrier of bad news" and hung up.
        Originally posted by goddessoflubboc View Post
        Your daughter had control of her end of the phone. She knew it was the dr calling. She chose to include you and her grandma. I'm not sure exactly how you think he should've informed her - encrypted email?

        I'm not sure why you posted this as "false diagnosis"?

        And it's "bearer" of bad news. Which the department of health is going to be to her attacker. She will not be identified, but he will be notified he was exposed to HIV.


        My daughter had plans to go to a concert with her boyfriend who she had been dating for a serious amount of time. After the concert my daughter informed her boyfriend of her status and he acted out in violence due to the fear my daughter had transmitted HIV to him. My daughter suffered many bruises, scratches, and swellings because of the way he reacted to my daughters results of being HIV positive. Although that is no excuse for his actions and he is currently being charged with domestic violence, kidnapping ,and false imprisonment. And due to the severity of my daughters injuries there is a no contact order against him. My daughter is completely lost and does not know how to stand on her own two feet anymore. She is depressed, she is showing signs of anxiety, bipolar, she is withdrawn.

        All of this happened on a Friday. We scheduled an appointment with Planned Parenthood who has been the only source of medical care for my daughter for the past three years. We told them that my daughter, Nicole, had been diagnosed with HIV and that we needed treatment. They then did a rapid HIV test on Nicole to confirm she was positive for HIV. We recieved the results within ten minutes and the results came back negative. We were excited and couldn't have asked to hear better news, but couldn't help to be skeptical at the same time. Why would a lab test that took three weeks to conduct come back positive while a ten minute finger prick at a non profit clinic come back negative? How accurate was the rapid test? Now having one positive test and one negative test we were more confused than ever. Of course all our hopes leaning towards the negative result Nicole nor I were satisfied knowing that she had a 50/50 chance that she had it or didn't. We then scheduled an appointment with another clinic. This clinic did the same type of test that Planned Parenthood used, and again the test was negative. Great news! But we still were not sold on the accuracy rate of the rapid tests. It makes more since that a test result that goes through a lab with multiple different tests are ran to determine a positive or a negative would be more accurate than a ten min rapid finger prick.

        With those feelings in mind Nicole and I then went to a different emergency room told them everything and even brought the test labs with us from the first initial ER visit confirming she was HIV positive. (That Monday we got a negative test result back we went down and got a copy of the medical report). We told the doctor everything, he looked at us puzzled and asked me multiple times "The doctor called and confirmed you were HIV positive over the phone and offered you no kind of help?" (My daughters emotions have been a roller coaster and she won't talk to any of her family about what she is feeling and the family does not have the money to pay for counseling or therapy). Nicole and I looked at each other kinda confused as to what type of help he was to offer me. According to the doctor at UC Davis anyone who is diagnosed with HIV is supposed to be offered counseling for multiple subjects. The most important subject of counseling would have been informing sex partners of your positive diagnosis. Along with a suicidal evaluation. They are also supposed to refer patients to a specialists to provide further health care. And if a patient does not have a primary health care provider they should refer one to them. After finding this information out I was extremely angry. My daughter was diagnosed with HIV and wasn't offered an ounce of care. Not medical, emotional, or mental! Then to top everything off UC Davis ran their own results for HIV and the blood was sent to a lab just as it was the first time around and the results were once again NEGATIVE! This doctor ruined a lot for my daughter who is only 21. Her life was completely flipped upside down and she lost people she cared about.

        Does this qualify for a health care malpractice? Or anything?! This Is just plain wrong!!

        Comment


        • #5
          Re: HIV false diagnoses

          She did not suffer any real damage by a misdiagnosis. She could always sue for the medical fees.
          Due to a recent promotion, I should now be referred to as Major Obvious.

          I would not be trying to provide information and knowledge if I did not sympathize.

          Some days it is just not worth chewing through the restraints to face life.

          Comment


          • #6
            Re: HIV false diagnoses

            Your daughter had to know the phone was on speaker and whatever the doctor had to say could be overheard by others in the room. Naturally, the diagnosis was a shock which is probably at the root of her angst.

            Labs make mistakes and they would be the culprit, not the physician who only reported their results. She did receive valuable information from UC Davis which, hopefully, she will follow. The trauma of the false diagnosis, then the situation with her boyfriend is enough to throw anyone into a severe state of depression. And the doctor's actions were callous, to say the least, by not referring her to appropriate care.

            There is low cost counseling available through Social Services which your daughter should seek out. She may be able to get a referral from either the University or Planned Parenthood to a therapist who works on sliding scale.

            Comment


            • #7
              Originally posted by Disagreeable View Post
              She did not suffer any real damage by a misdiagnosis. She could always sue for the medical fees.
              The doctor told her to tell her sex partner that she was positive. She did not recieve the proper knowledge on how to do so, but she followed the orders of the doctor and was put into a potential life ending situation. If there was not an off duty police officer there to save my daughter. I may not have ever gotten to see my precious baby girl again.
              I had no idea she was going to tell her boyfriend at the time. She said she wanted to sit down and talk with me on how to tell him. But i know she couldnt enjoy herself and it was killing her to keep a secret from him. Especically with the voice of the doctor telling her she had to tell him in the back of her mind. It just doesn't seem right. And i believe there is someone i can hold accountable for these awful events.

              Comment


              • #8
                Re: HIV false diagnoses

                The fact is these tests are not 100% accurate.
                Due to a recent promotion, I should now be referred to as Major Obvious.

                I would not be trying to provide information and knowledge if I did not sympathize.

                Some days it is just not worth chewing through the restraints to face life.

                Comment


                • #9
                  Re: HIV false diagnoses

                  If the misdiagnosis was the result of negligence then she may have grounds for a medical malpractice case and/or negligent infliction of emotional distress lawsuit. Her damages pertain to the medical bills and for your mental suffering, loss of standing in the community, etc. Hire an attorney immediately and discuss the matter in detail with a medical expert.

                  Comment


                  • #10
                    Re: HIV false diagnoses

                    And now for the medically accurate answer...

                    Your daughter was told to follow up with her primary care provider regarding her initial HIV test result. When your daughter said she did not have one, this physician encouraged her to get one. The ER physician has no legal responsibility to find her a primary care physician.

                    If she had followed these suggestions (instead of simply running to Planned Parenthood), another HIV screening test would have been done. The question as to whether the rapid test done at Planned Parenthood was accurate is a bit moot as the recommended time period for testing is typically 20, not 10 minutes.

                    If she remains concerned regarding her status, she can always consider purchasing a home testing kit (i.e., the Oraquick test) and FOLLOW THE DIRECTIONS as stated on the box. This is an FDA approved test for home screening for HIV. WAIT 20 minutes for the results.

                    If positive, she makes an appointment with an Infectious Disease specialist for a second test known as a Western Blot to confirm (or rule out) HIV.

                    Screening tests check for antibodies the immune system begins to produce when transmission has taken place; there ARE (in some cases), false positive test results just as there are false negative test results. This does not, by the way, indicate malpractice on the part of the medical provider ordering these tests.

                    Gail

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